it has been a little while since I have written much here on my personal blog. I think I have been quieter mostly because the last 8 weeks or so have been rough.
My downturn started with the start of progesterone therapy, which knocked me face first on the floor and I haven’t quite gotten back up again. I had mind-numbing fatigue again, food cravings that rivaled starving animals, and weight gain (😭). I was also feeling my emotions and personality slipping…just not myself. It got bad enough that I went back to my local kinesiologist feeling like my body was screaming at me and she said that she had never seen a reaction to progesterone that extreme, it was storing up in my body and I couldn’t get rid of it. One other thing she confirmed, whether it was related or not…Borrellia flared up again, this time in my vascular system.
There is a lot that has happened; first after pushing through for two months my ND took me back of the progesterone (phew)(right after I saw my other doctor) and said my adverse reaction could mean a pituitary problem, among other things. The good part is that I also got the good side effects of the progesterone that we were hoping for, it’s just that the bad greatly outweighed them.
Sigh. So after a very long in-depth appointment with my amazing ND going deep into issues that no doctor has before, we have a plan. So I enter a new chapter of treatment as my ND is going to go aggressively after this horrible lymphedema/lipedema that has so plagued me for years with no end in sight, he is going after this last remnant of Lyme, he is going after the mycoplasma and a lot of other stuff that is still a mess. He is going to put me on a strict IV regimen along with other things. Two of my family members who have had “the” test have been positive for mycoplasma (I only need to have be blood work myself but I know what they will find). This seems to still go all the way back to those 5 1/2 years as a kid living in a house with 13 different kinds of mold, one of them being black. We also still don’t know what chemicals and metals were dumped in the groundwater of our well that is still effecting us.
This really helps to understand why we have had such a tough time beating the Lyme and getting better, we are still being peeled like figurative onions uncovering more and more damage and disease.
Now I must say in spite of this the LLDC in Idaho has still helped immensely; my cognitive and neuro stuff has never returned after his treatment, and although fatigue and body pain still remain it is just not on the same level it was. He treated parasites and other Lyme co-infections that have stayed treated. He gave me my life back.
Now on an amazingly positive note (🎶) I am going to Disneyland tomorrow!!!!!!! I can’t say enough what a big deal this is to me and to my sister. The Lymies will know how illness can consume you inside and out, literally eat a hole in the middle of your life that gets so deep you can’t even see daylight anymore. Well I haven’t had the health or finances to go on any kind of vacation in 16 years, so this is EPIC. My sister and I are still struggling, but this is the first year (thanks to our LLDC) we have had health enough to even attempt anything like this. On top of that it is also with the help of some lovely and loving friends lending a hand that it is financially possible.
All in all we are thankful to God, ultimately He has made it possible in His kindness.
So we are hoping that we will have the time of our lives, and be ready when we return to face a new battlefront.
We will also ask for prayer for our family as it is all four of us that are still ill and in need of treatment. We will be unable to afford to see this through without a miracle from God