A Lyme Quote Might Be In Your Grocery Store

Have you found this on the shelf yet? Check out the Trilogy flavor of GT’s Kombucha!

  
Why is this so cool? It’s not just that something I wrote got on national shelves. It’s cool because this is something I wrote years ago while sitting in my doctor’s office, during one of many appointments over the years in this Lyme fight. It went on an erasable board in the exam room with other little quotes from her patients, and it’s still there years later.

Like many people who get diagnosed with Chronic Lyme it is a multi-step emotional process; denial, grief, acceptance, fight. 

This isn’t true for everyone, and maybe not in that order, but we all at some point (hopefully) reach the point where we face it and fight. 

So to my fellow Lyme Warriors and Invisible Illness sufferers; every time you see this on your Kombucha, its for you.

And for those that are able to either help and/or share, I can’t do this alone: Lyme Fund

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Stumbling

the last 6 weeks or so I have been struggling. After getting myself on a “good cycle” for a while with the help of my docs I have been in another bout of fatigue, gut stuff, worse swelling…. (My ankles tonight actually scared me). 

I know a big part of it is that the progesterone therapy has been really hard to adjust to. When I started my first round I was knocked down so hard the first 5 days or so with fatigue I couldn’t even stay awake during the day (yes, I am taking it at night). This second round has not been as bad but I am in the midst of what has become the common state of my life for so many years; a state of fatigue and downright tiredness. Now I am going to go into “Lymie speak” because I know the Lymies and the chronic illness sufferers will understand this; this isn’t the same level of “deep to the bones, mind numbing, I think I am going to die, and if I’m not please someone kill me so I can sleep fatigue” that is your life in the midst of the worst of this disease, but it is more like I am still myself but with layers of mono, anemia and maybe a dash of flu. Plus of course the swelling and gut.

But I must say the bad swelling and gut stuff might be exacerbated by the fact that the progesterone strips me of my self-control and makes me want to EAT. And by loss of self-control I am not talking about carbo loading or major cheats, I am talking what bad eating looks like for me, which is stuff like eating pumpkin seeds several days in a row, or some dark chocolate (the good ingredient low-sugar organic kind), and my boldest cheat, gulp, some sheep milk yogurt today. 😔

My body hates me, that’s all I can say. Because the reaction I get feels like I did something truly dreadful like sour dough bread and butter. 

My mind toggles back and forth between “this is crazy, something is desperately wrong because those little things should not cause a full-on autoimmune freak out” and “you have not given your body the break it needs to get better. A bite here, and item there…it’s my own self-sabotage“. I am immensely guilt ridden when I don’t make it though the day with flying colors and can’t control myself as strictly as I would like to, and frustrated that I have been knocked from getting back into a good exercise routine, back to ground zero because of fatigue.  I really want to do a 2 week vegan cleanse just to give my body a break if I can muster up the will power.

Even my coworkers said I looked drained and have been looking sicker and more tired. My skin and color aren’t as good either.

So, how do I get back out of this? I’m not sure but there is one bright light in all this; I have been just rejoicing in the Lord and He has been sustaining me. I have also been able to keep my creativity up, which is also a blessing. Hopefully my body follows soon.  

 

The Reason Wheat Is Still Killing You Even If You’re Glutenfree, And It’s Not What You Think

Here is a radical paradigm shift in how we think of grains that the food industry doesn’t want you to know.
I am horrified that even gluten-free and organic wheat (and some other grains) won’t save us from killing ourselves. Ready for this?
——–>. The Truth Behind Why Grains Are Killing Us

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Just ‘Cause You’re Sick Doesn’t Mean You Can’t…..

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Yes you are in bed most of the time. Yes you feel like that possum that got hit by the truck. Yes you are kind of stuck and down in the dumps. You can’t do most of the things you want to do, so it is easy to get depressed, feel worthless and a burden on society. We’ve all been there, no matter what point in our illness we are in right now.

So since it is so easy to focus on the “can’ts” (which lead to feeling worthless), here are some “can’s” you can do right from your bed. And please don’t put these ideas down as cheesy, maybe some are but it’s the little things that sometimes make the day brighter.

 

Image1. Write Thank You Cards “just because”. Are there people in your life that you love and appreciate? How good would it feel to surprise them with a random thank you. Don’t be afraid to fill it full of detail about everything you love about them. And don’t be afraid of the digital Thank You! Are cards a little passe for you? Or maybe you can’t even get to the post office? Send a Facebook message or tribute post praising your friends and family for how fabulous they are.

 

Image2. Movies! Make it through the AFI top 100 Films list….or Best Musicals…or whatever list you choose. Okay I admit to growing up watching a lot of movies, but it is something I really enjoy and I appreciate the old ones as well as the new. Sick in bed might be the perfect time to be able to say  to someone “Why yes I have seen every film starring the great Cary Grant. Who of course was born as Archibald Leach in England and was a circus performer.” (yes, bedridden=time) There is no shame in being a film aficionado! (and may I add that binge watching television series is a lot of fun as well). Make a check list and tick it off as you go, at least you will feel accomplished 😉

 

Okay, these next 2 might be tough for those suffering cognitive issues (I went through years of struggling with reading)

Image3. Catch up on the Classics. Pride And Prejudice, Moby Dick, Tom Sawyer…….. there is a ton of classic literature out there that most of us haven’t read. Sick in bed is the perfect time! Now like I said I went through years of having trouble reading, When I tried I would re-read the same sentence or paragraph over and over and just not be able to take it in. Plus I had Lyme-induced dyslexia and Lyme-induced reduced visual acuity. So what I found (that I still love) are audio books. Especially now with smart phones this makes audio books very accessible. Audible (an Amazon company) has basically saved my life!

 

Image4. Discover art. Whether you are artistic or not everyone can enjoy sketching or drawing. Get some good art paper and some nice pencils, or even water colors or pastels. You might awaken the artist in you.

 

Image5. Scrapbook. Get colored paper, stickers, fancy scissors, glue sticks…. have fun.

 

Image6. Photography. Subject matter is of course limited in your bedroom, but if you are able to take short walks or sit in the back yard just play around taking photos. Try different angles and lighting…. lie on the ground and look up, walk a few steps and look down…you will be surprised at the hidden treasures all around. Play around with your photos editing on your phone or computer. The possibilities are endless.

 

Image7. Get some fish. Fish are easy no-brainer pets. If you don’t want to mess with filters and taking on too much work, get a Betta fish, just make sure the tank isn’t too small. Fishy likes space too after all. Fish are therapeutic to watch and it is nice having something to care for.

 

Image8. Learn. If your poor diseased brain is up to it find subjects of interest and learn about them online. The information out there is limitless.

 

All these ideas are just a starting point. I think just making a list that fits the parameters of where your health is that you can check off will give you a sense of accomplishment. Whatever you decide to do take the step and do it, you deserve it.

I LOVE Kombucha, but Kombucha may not love me. What to be careful of if you battle these illnesses….

 

Kombucha has become very popular because it is natural, tastes great and is full of healthy bacteria. But what a lot of people don’t know is that Kombucha is made from a combination of bacteria culture and yeast. Yes, Lymie ears just perked up, yeast.

Kombucha and Candidahttp://bodyecology.com/articles/can-kombucha-feed-candida-and-cause-heartburn#.Ux_WYYUbjIU

This means that if you have Lyme and are being treated for it this greatly raises your chance of candida overgrowth which leads to the very strict diet that most Lyme sufferers are familiar with. I will say some people are totally fine with Kombucha, but some people will notice more air in their tummies and more candida symptoms. If you have an LLMD be sure and ask them about kombucha, but no matter what they say if you are symptomatic avoid it. Also people with certain digestive disorders should also be careful. Personally I have gone through most of my treatment needing to avoid kombucha because it didn’t agree with me, but recently I have been able to get away with having one once and a while.

Here are some alternatives to Kombucha if you want natural probiotics:

ImageKimchi, Sauerkraut and fermented foods. These are amazing for getting “happy gut” bacteria. Here is a great article: http://articles.mercola.com/sites/articles/archive/2013/06/01/fermented-vegetables.aspx

ImageFermented coconut water. I am not sure if this is available everywhere but I LOVE Kevita! It is a different culture than kombucha and does not contain yeast

http://kevita.com/

ImageLactose-Free Kefir. If you are going to use kefir as a source of probiotics make sure you go lactose-free. Or if you can tolerate goat milk kefir that is also an option.

ImageIf you would still like to drink kombuch choose one that is low in sugar (kombuchas can range greatly in sugar content). You can choose some that are as little as 2 grams per serving, while on the other end of the spectrum some are as high as 12 grams per serving (24 per bottle), so be mindful of that.