A Chance on a new LLMD, a Vacation and Hope

Well my sojourners it is time to share that I have been planning a little trip; Tomorrow I embark on a road trip to Coeur d’Alene Idaho to see a new LLMD to see if we can finally clear up the rest of this Lyme stuff, and/or biotoxic illness/chemical exposure/heavy metals….all of the afore mentioned, whatever…. We will see.

It is rather interesting because I have heard of Dr Smith several times over the last year and one of my dearest friends who has/had Lyme and was incredibly ill, went to see him in December (with several subsequent visits) and she is doing amazing! Basically she went from partially bed-ridden with heart issues and mild seizures to…….Normal! It is quite remarkable. Another man and mutually acquaintance of both of ours also saw this doctor and is doing well. And now just 10 days ago one of my family members who has been having unexplained health issues for years went to see this doctor and was diagnosed and started treatment for Lyme (she previously had a negative Western Blot). So she has begun a journey to healing.

It took me a long time to make the decision to see this doctor, partly because I have immense faith in my current LLMD here in Seattle, and partially because any treatment for Lyme that does not take at least 2-4 years not only seems too good to be true, but also goes against all the evidence and research regarding chronic Lyme. So when something seems too good to be true and yet you see results right before your eyes you must adjust your thinking and open your mind to new possibilities.

But isn’t it always this way with any kind of medical breakthrough? The Western Medicine we have all been raised on is so filled with falsehoods, with a philosophy of “don’t cure it just throw a dangerous drug at it”, and yet we do not question “the truth” until we see evidence otherwise. After all, almost every Western Medical doctor would tell you that Chronic Lyme is not even real and yet the science and proof is right there for anyone to find.

I do want to say that I still believe I have a great LLMD here and he has done remarkable work with both my sister and I, we are so much better than we were two years ago. He continues to help Lyme patients here and even from other states and overseas. But I want FULL health and to attain that 25% or so of me that is missing, the pieces that are always too tired, in pain, swollen and inflamed, the piece of my mind I know is still hiding from me…. If there is hope that full health and life is within my grasp I will chase it down.
I’ll let you know how it goes.

Dr Tony Smith Lyme Stop

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Just ‘Cause You’re Sick Doesn’t Mean You Can’t…..

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Yes you are in bed most of the time. Yes you feel like that possum that got hit by the truck. Yes you are kind of stuck and down in the dumps. You can’t do most of the things you want to do, so it is easy to get depressed, feel worthless and a burden on society. We’ve all been there, no matter what point in our illness we are in right now.

So since it is so easy to focus on the “can’ts” (which lead to feeling worthless), here are some “can’s” you can do right from your bed. And please don’t put these ideas down as cheesy, maybe some are but it’s the little things that sometimes make the day brighter.

 

Image1. Write Thank You Cards “just because”. Are there people in your life that you love and appreciate? How good would it feel to surprise them with a random thank you. Don’t be afraid to fill it full of detail about everything you love about them. And don’t be afraid of the digital Thank You! Are cards a little passe for you? Or maybe you can’t even get to the post office? Send a Facebook message or tribute post praising your friends and family for how fabulous they are.

 

Image2. Movies! Make it through the AFI top 100 Films list….or Best Musicals…or whatever list you choose. Okay I admit to growing up watching a lot of movies, but it is something I really enjoy and I appreciate the old ones as well as the new. Sick in bed might be the perfect time to be able to say  to someone “Why yes I have seen every film starring the great Cary Grant. Who of course was born as Archibald Leach in England and was a circus performer.” (yes, bedridden=time) There is no shame in being a film aficionado! (and may I add that binge watching television series is a lot of fun as well). Make a check list and tick it off as you go, at least you will feel accomplished 😉

 

Okay, these next 2 might be tough for those suffering cognitive issues (I went through years of struggling with reading)

Image3. Catch up on the Classics. Pride And Prejudice, Moby Dick, Tom Sawyer…….. there is a ton of classic literature out there that most of us haven’t read. Sick in bed is the perfect time! Now like I said I went through years of having trouble reading, When I tried I would re-read the same sentence or paragraph over and over and just not be able to take it in. Plus I had Lyme-induced dyslexia and Lyme-induced reduced visual acuity. So what I found (that I still love) are audio books. Especially now with smart phones this makes audio books very accessible. Audible (an Amazon company) has basically saved my life!

 

Image4. Discover art. Whether you are artistic or not everyone can enjoy sketching or drawing. Get some good art paper and some nice pencils, or even water colors or pastels. You might awaken the artist in you.

 

Image5. Scrapbook. Get colored paper, stickers, fancy scissors, glue sticks…. have fun.

 

Image6. Photography. Subject matter is of course limited in your bedroom, but if you are able to take short walks or sit in the back yard just play around taking photos. Try different angles and lighting…. lie on the ground and look up, walk a few steps and look down…you will be surprised at the hidden treasures all around. Play around with your photos editing on your phone or computer. The possibilities are endless.

 

Image7. Get some fish. Fish are easy no-brainer pets. If you don’t want to mess with filters and taking on too much work, get a Betta fish, just make sure the tank isn’t too small. Fishy likes space too after all. Fish are therapeutic to watch and it is nice having something to care for.

 

Image8. Learn. If your poor diseased brain is up to it find subjects of interest and learn about them online. The information out there is limitless.

 

All these ideas are just a starting point. I think just making a list that fits the parameters of where your health is that you can check off will give you a sense of accomplishment. Whatever you decide to do take the step and do it, you deserve it.

It’s Not Over

I got asked an interesting question today… Do you think you are over the Lyme? Well I honestly don’t know. I have come SO far from where I was a year ago, and a year ago I was much better than six months before that. Of course few people who have Lyme are dealing with just Lyme, whether it be co-infections like Bartonella, heavy metals…..what have you. For me besides the Lyme it has been chemical toxicity, long term mold exposure, Leaky Gut, Systemic Candida, heavy metals, and MTHFR and one other genetic defect that prevents all this gunk from leaving my body…and the havoc all the above have caused along with way. 

The last couple weeks I have had a huge amount of physical and emotional stress and my body is just not recovering. There is deep fatigue that no amount of rest seems to alleviate. I know that there are multiple factors here because last Monday my doctor also tested me positive for some kind of new chemical exposure, and I was also having a massive histamine reaction that was causing a good deal of pain. And besides that I had reached the end of my RX for candida and it has been flaring right back up again. Sigh.

So with all this “stuff” I really have no idea what part any spirochetes Imageplay in all this. I am about 20 months into treatment and I know there is huge improvement, so I think the little guys are mostly dead. But they do cycle (every 7 months?) I believe, so it is a matter of being in treatment long enough to kill all the generations, and of course I don’t know when these cycles are happening but stress on the body can make a herxeimer reaction worse.

Anyway, at the end of the day the answer to the question is “I don’t know, we shall see”. Here is a link to an article by my LLMD on how to determine the end of treatment: (just “X” out of the pop up)

http://www.treatlyme.net/treat-lyme-book/finished.html

10 Of The Causes Of “Fibromyalgia”

10 Of The Causes Of “Fibromyalgia”

As (most) of us know Fibromyalgia is a symptom not a disease itself. Here is a really intelligent list of some of the causes (link in title). One not listed here is of course Lyme which causes Fibromylgia-like pain, especially while herxing.