Trusting God In The Process

GONNA’ MAKE IT

“God sees not as man sees, for man looks at the outward appearance, but the LORD looks at the heart.”

1 Samuel 16:7

“Do not store up for yourselves treasures on earth, where rust destroys and where thieves break in and steal. But store up for yourselves treasures in heaven, where thieves do not break in or steal;”

Matthew 6:19-20 (abridged)

Make the goal.

Make the deadline.

Accomplish the task.

Make enough money.

Be a success.

Attain the stuff.

Endure/put up with/get through The trial or difficulty simply with the goal of having it be over so you can get back to doing all of the above.

In our humanity and our society we are very much goal oriented as far as how we consider success. But we are also very much that way when it comes to trials or difficulties; just get to the end and have it be over with! We see the entire “goal” of difficulty to have it be over.

This seems to be very much magnified in our modern Western society where we are driven by comfort, accomplishment, acknowledgement and success. These things are the alter at which we worship and pay tribute to with our very lives.

How opposite we are of God in our viewpoint due to our finiteness.

Because you see God is all about the process. Backwards thinking huh? Or as one of my best friends would say “upside down Kingdom”.

EVERYTHING IS BACKWARDS

…we will stand amazed to see the topside of the tapestry and how God beautifully embroidered each circumstance into a pattern for our good and His glory.

Joni Eareckson Tada (quadriplegic for 50 years)

Anyone who has seen the hugely popular Stranger Things understands the concept of the “upside down”. A world in perfect mirror of ours only it is dark, decaying and full of monsters.

Of course in this Sci-Fi series the “good” world is our own natural one.

But in reality (not tv) we exist in the fallen world where there is death, evil, disasters and pain. It is hard to imagine the perfect Eden God created and what this world was meant to be. But having an awareness that Christ’s death ripped the veil and brought about the Kingdom age of the earth (the indwelling of the Holy Spirit and direct access to heaven in prayer) can change our perspectives of being in defeat, to coming into awareness that victory has already been won.

The enemy’s number one goal at its heart is really about destroying our victory and awareness of who we are in Him.

Ahhh but spiritual warfare is a lengthy topic for another day….. (But hold onto that knowledge!).

Are you downtrodden and disappointed right now? In deep suffering and trial? Is it bringing you poverty, loneliness, oppression, discrimination? Are you low on wealth, love, employment, friends, family, health and comfort?

Those are all super important and the basics in life, and yet they are still things and count as treasures on earth.

No, it doesn’t seem fair and before you think I pass judgment, I am also poor and suffering in many of those same things and have been for years.

“Therefore we do not lose heart, but though our outer man is decaying, yet our inner man is being renewed day by day. For momentary, light affliction is producing for us an eternal weight of glory far beyond all comparison, while we look not at the things which are seen, but at the things which are not seen; for the things which are seen are temporal, but the things which are not seen are eternal.”

2 Corinthians 4:16-18

ACCEPTING WHAT IS UNACCEPTABLE

“For I am confident of this very thing, that He who began a good work in you will perfect it until the day of Christ Jesus.”

Philippians 1:6

Once we have an understanding and acceptance and even appreciation of God’s process (especially when it comes to our own situation) this doesn’t always mean that our attitudes or emotions at every given moment reflect this understanding.

Emotions fluctuate.

It took many years but I did finally come to not regretting years of illness and the loss of so much life to something that was out of my control.

I came to appreciate all that God had done in me and through me and continues to do. That said, in the years since that understanding I have not always been happy about it, or always appreciated or not reverted to regret.

I have to admit right now being in the season where negativity has been over- running any kind of positivity and I really don’t like myself very much right now.

I have experienced the ebbs and flows that go on in my body, my mind, my emotions and my spirit for so many years that I feel like I can never find level footing as far as where I am in my life, or my spirituality or my own personality. This can be incredibly frustrating especially when I am very much aware of it and how it is affecting myself and others.

As is usual during the more negative times I am quite aware that there is very much a physical component to my outlook comprised of how my internal organs are functioning, my hormones, my toxicity levels and many other factors. But that does not mean I am not responsible to take control to the best of my ability my relationship with God in these times and with others.

Whether I feel like it or not it is in these times that I should all the more dig my feet in as hard as I can into Jesus and into the Word to counterbalance the chaos and negativity inside my mind my body.

What happens when I act out of obedience and do just that? What you’re reading right now is a fruit of what happens. God opens up a channel and I’m able to do the best I can with his help to write for him.

SEEING INSTEAD OF LOOKING

We know that as long as we have breath in life that God is not finished with us. When he is “done” (for reasons that are wrapped in the mystery of his will), we go home. So while we have life whether we be in the midst of trials and difficulties or if we are blessed enough to have things easy; we should never stop seeking, growing, learning, exploring all the things that God has for us in our hearts and souls.

Because that’s why we are here right now, for those things in ourselves and in others.

We’ve Got stuff to do. And if we don’t know what that stuff is right now, at least we know Who to go to to ask.

Knowing God is the beginning of knowing His will and getting to understand what He is up to. Because when we are going through horrible trials we lose our comforts and the very things that (we think) bring us stability (such as money, a steady job, a loving relationship or our health). When we lose our foundations our world is rocked and we have nothing to stand on.

But I think that is the point. When we lose our false foundations we truly do know where we are spiritually, how much faith is real and how much we do or don’t trust God. That is why we are told to consider it all joy when we have trials, because we know we have God’s loving attention and He is looking to building the gold inside us by removing the costume jewelry we have surrounded ourselves with.

“You can never learn that Christ is all you need, until Christ is all you have.”

~Corie Ten Boom

If you have not read Corie Ten Boom’s story I highly recommend it. She survived a German concentration camp and witnessed the murder of her family as well as countless others.

“”Behold, I have refined you, but not as silver; I have tested you in the furnace of affliction.”

Isaiah 48:10

CONCLUSION

We will all go through trials and difficulties. It’s not a maybe it’s a sure thing. The difference is how we choose to face them and Who we choose to face them with and what we allow Him to do in the midst.

One thing that is assured in Christ is that (hear this!) it’s not for nothing and it’s not pointless!!! Quite the opposite. Rather instead we have blessings that would have been unattainable otherwise. I don’t know about you but if I’m going to suffer I sure want to be looking for the treasure and not miss out. It doesn’t mean it’s easy, but it means I will continue to ebb and flow in this journey of life and go through the cycles of negativity only to bob my head free again and recognize the truths God keeps reminding me of and giving me a better understanding of as I work at running the race.

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The Judgement & Scrutiny Of Living With Chronic Illness 

(*disclaimer at the bottom of article)
Judgment. 

Scrutiny.

 Those words immediately evoke feelings of negativity. Living with chronic illness is negative and difficult in itself, but have you ever stopped to think that almost every person batting a chronic illness also gets “insult added to injury” (literally) by being judged and scrutinized in everything they do?….. What they post on social media, every choice they make, every event they attend or don’t attend, everything they eat and every purchase they make? Yes. This is a huge part of living with chronic illness. 
   Can you imagine suffering from a condition and all of a sudden even “normal” activities and decisions come under the watchful and judgmental eye of everyone you know?
What do I mean? 
Example: “Shelley” suffers from chronic Lyme. All her friends and family know this. They know treatments are expensive and Shelley spends a lot of time at the doctor. Shelley also says no to a lot of family functions and activities with friends. Shelley also shares her struggles on social media and everyone knows she is struggling financially as well due to all her medical expenses. Some of Shelley’s family are very negative; they knew Shelley when she was active and vibrant and can’t understand how this sickness seems to go on and on without end. They think her posts about illness are attention-getting and that Shelley is needy, especially being that she is single and they think therefore she is trying to get sympathy. They think she is pathetic. Some of them let her know and express their anger. Some of them no longer speak to her at all.
Shelley also feels like she can’t win when it comes to socializing….
(NO) When Shelley says no to an event or dinner (or has to leave early or rest in the middle):
People think Shelley is being a drama queen again, or lazy, or being anti-social, etc. 
“She always says no so why bother asking”
“She is so self-absorbed with her problems. If she just got out more and acted normal she would feel better”
“Sickness has become Shelley’s identity. If she just stopped owning it she wouldn’t be so sick” 
“Shelley is not as sick as she thinks she is. Lyme is an excuse”
“Shelley has some kind of social disorder and is using sickness as an excuse”
“There she goes again, lying on the couch in the middle of a party. Apparently she wasn’t getting enough attention…”
(YES) When Shelley says yes to an event, or dinner: People think
“how can she be sick in bed yesterday and out today looking normal today?”
“She is such a liar, she said she couldn’t go out his morning and there she is tonight out with friends”
“She must be getting better, finally this Lyme thing is going away”
“You look good! You look healthy, you must be better”
“How can she afford to go out when she was just posting her Gofundme yesterday?”
“All this posting on social media about being sick, and yet when I see her she looks fine”
“Should she be eating that?”

You see I am Shelley. If you are ill and reading this, you are Shelley. And I know dozens and dozens of Shelleys that have the same experiences. 
Most people don’t think twice about going out to eat, taking vacations, hanging with friends, going to movies, buying a pair of shoes…

But when you deal with chronic illness things are a little different. Have you ever considered how much judgment someone who is sick receives? And this is on top of all the physical, emotional, mental, spiritual and financial suffering. 
That’s why I write. Because most judgment comes from naivety and simply not understanding. 
I have to deeply think before I post anything regarding my illness; TMI? Who’s my audience? Sharing info with fellow Lymies versus relatives that are going to roll their eyes at another health post?

Am I going to get negative backlash?

Are people going to get the wrong idea?
I also think twice before I post anything about going out, being with friends, or anything that has to do with spending money….. 

You see guy can buy new shoes if you need them without a second thought. But if I do I have to assess who might judge me knowing that I struggle financially. See what I mean? And I also don’t want to hurt that friend that I said no to yesterday when I felt super fatigued when they see me out with someone today because I rested and feel a little better.

I also struggle with guilt and and moral questions whenever I do something fun or spend a little money. Am I “allowed” to have fun? Can I justify a purchase for myself? Even though I am. It by any means extravagant (I rarely go shopping, buy clothes, and almost never eat out) I feel funny when I do and feel I have to answer for myself to everyone I know. 
Conclusion. 

This isn’t a perfect essay, and I didnt touch on a lot (including judgment and negativity from the mainstream medical community that doesn’t understand certain chronic illnesses), but there are tons of bloggers out there and they are doing a great job being a voice for this community. All we can do is try our best, and have an extra dose of grace as we raise awareness to those who would judge us. 
*Please note that this essay is on the topic of judgment and scrutiny; There are a LOT of kind and understanding people who do take the time to learn, ask questions, talk and give support. Thank you all my friends and family that fall in this category. 💚

  

The People Society Forgot

Have you noticed how insanely busy everyone is? And I do mean insanely!!! Life is non-stop running from this place to that, calendars are full, people have very little time to invest in each other anymore or cultivate relationships.

It is almost hard to remember days gone by (hey I’m getting old) before cell phones and social media when people actually talked to each other more. They had time for their friends, getting together to visit was simpler… it didn’t involve so much coordination and stress. Oh, and people cared for each other. Remember that? 

Now before I come off as bashing the character of everyone in our western society; I’m not sure who to blame, it just seems to be what happened to all of us, and most people are not unkind or unfeeling, it’s just that they’re so darn busy.

For the chronically ill that have fallen off the conveyer belt of this life that drives, drives, drives and never stops moving or let’s anyone take a breath…. we often feel forgotten. 

Now what’s great is that when you are not well enough to be uber social, cell phones and social media are a life saver, at least in some ways. You see we also have a window into the world that has forgotten us; people that goon hikes, hang with friends, go out to dinner, spend time with everyone but you because everyone else is up and mobile and, frankly more fun.

Ahhh the chronic illness suffer, we are like a low budget B movie that was made 20 years ago that most people forgot even existed, until someone says something like “hey wasn’t ‘_____’ like at that thing with that other person we went to way back when”?

Now you (normal person) may actually think of us from time to time, pray for us, have us run across your mind…. But guess what? We don’t know that!!!!!. 

Silence= I don’t matter and you don’t care. 

Again, I’m sure the person reading this is a good person, and a busy person, but maybe just as a favor to me, when “_____” comes to your mind and you haven’t seen them in a while and you know they are struggling, send a quick text, an IM, or maybe one of those old-fashioned phone call things. 

Please Imagine being too sick to do what you are out doing right now, and instead that you were home alone most of the time,  imagine (some) of your friends staying silent, for weeks, months…. 

Now Imagine now if they weren’t.

Thanks for listening readers 💚

Is Hope A Burden? And Accepting Circumstances…

I have been in a different place as of late; all I can say is that there has been an internal shift and this last round of die-off did something to me on a deep level.

As you know (I think at least) I had kind of a double whammy that began with starting a cellular detox May 20th followed by treatment by my LLDC May 23rd where he found that the three B’s were in remission, but that I had Epstein Barr, Non-STD Clamydia, Erhlychia, Lyme Coinfection virus A and C, plus Protozoa.  The first several days after treatment I was fine, felt great in fact and even had some activities with friends. But then I got hit hard and went back down the rabbit hole as I call it. I had been experiencing horrible body pain (much worse than the norm), bad enough to keep me from sleeping at night and causing several bouts of tears, both from the pain and frustration. Also any energy I had got snuffed out, went into a foggy place again, swelling worse… You know, all the usual stuff. 

Somewhere in the midst of this the hopeful light in me went out; it’s just been too many years….too much struggle. Thankfully I felt a slight lift a few days ago and checking the calendar it coincided almost exactly with six weeks post/treatment (they always say die off runs about six weeks with this therapy). I am still not feeling great but I think (hope) this accute bad spell is behind me. But I am left on the other side of this most recent storm a little different than when I went in. It’s hard to explain; I have been through the mind-numbing years when things were unbearable and I was in a state of apathy, grieving and hopelessness, simply surviving one day at a time. I have been through the period following this of awakening and letting go of grief and the regrets of lost time and loss of life and having so much hope for the future… Letting myself dream again. But now I seem to be in a place of complacent acceptance where hope itself has become a burden and not a joy. 

I guess I need to clarify that I have not lost hope in the Lord or the fact that He has good things planned for me or is doing good things, not at all. By His grace I have grown so much and continue to grow. I am blessed by a family I love dearly and we all weather this ongoing storm of chronic illness together because we are all in the same boat, it’s drawn us closer. I am blessed by some of the best friends a person could possibly have. I am blessed by my dog who is a gift from God (Shiloh’s Story). I am immensely blessed by my current job and the people I work with. But I am coming to recognize that some things I hoped would happen in my life are not happening and may never happen, and living every day thinking about what may never be is exhausting. So I am mentally closing the door on finding love, having a family, being “normal”, traveling, all the stuff that people do….  If God chooses to open that door that’s up to Him and it will be welcome, but I need to accept this little room and this life the way it is and just live my best for God one footstep at a time, one encounter at a time. If an online platform for fellow I.I. Sufferers is my calling and my little window out into the world, I have to be okay with that.

No I can’t be financially independent. Yes I have limited energy and have to manage my spoons. Yes life is a yo-yo with periods of brief normalcy followed by times of scraping by. Folks I’m just tired, and desires for the big stuff has kind of been squelched. 

Is this a good thing or a bad thing? Honestly I’m not sure, and the answer may be a little of both. I have been reminded a few times lately of Joni Earicson Tada and her story and her amazing minsistry. She had to come to acceptance of the fact that she would never use her arms or legs again (something that is unimaginable to me) and she has lived in so much grace and love. She has touched millions and that never could have happened if she grew bitter or kept striving for healing that would never come. I can’t think of a better role model than Joni. Who am I then to think I deserve better than this life of struggle I am living? Even if I am single forever and I never have a typical/normal life or the things most people take for granted, Or will never be able to eat everything I want, or do activities I want, if I forever have to pick and choose between things in life according to my energy level, if I have to deal with a certain level of constant pain, fatigue and swelling…I am still blessed and I can do a lot if I just let God do whatever He wants to do with me day by day.

So today after having taken a nap that has (again) become a common occurrence, sitting here on my bed with a bit of deep tissue pain, the usual swelling, headache and fatigue… I recognize I was also able to take a little walk in the pleasant summer rain with my fur baby love of my life, come home to a safe comfortable place to my loving family, and be able to write this post. Life is hard, but it can still be good 🙂


Beautiful slightly stormy sky this evening 

When People Put You Down For Not “Looking Sick”…. :P

So how do you explain Lyme disease to someone who thinks you “look fine”?

“Imagine the worst flu you ever had. Then, imagine not sleeping for 3 days straight. Then imagine how it feels when you have something on the tip of your tongue, but you can’t remember it for the life of you.….”

http://www.livinglyme.com/Explain-Lyme-Disease.html

So what does “sick” look like anyway? Hair falling out? Swooning on the sofa? Grey clammy skin? Unable to stand up? Most chronically ill people (including a lot of cancer patients, those with heart disease, etc and other “respected” diseases can look perfectly fine). There are those of us Lymies who do suffer from the above mentioned symptoms…these, and far worse. However for the functioning or semi-functioning Lymie not looking like you are suffering while you are suffering on the inside can be a challenge. To everyone around you you might sound like a broken record and people can get weary of the “unending troubles”.

To those of you who know Lyme sufferers; trust us folks we are weary too! We grow tired of how we must sound to you every time you ask us how we are doing. We hate that question because the answer usually involves the high points and low points of our day (which can change radically), one symptom being better while another one is worse… We know how we sound, we are much more tired of talking about our suffering than you are of hearing about it.

Also know that you are statistically more  likely see us when we are at our best, and those times when we “disappear” off the face of the earth for days, weeks or months at a time are the times when we more than likely are in fact swooned on the couch (tv remote in hand).

Please understand how lonely and isolating this life is for us. ( https://jeanvieve7.wordpress.com/2013/07/15/the-emotions-of-an-invisible-illness/ ) The toll it takes on us not just physically but mentally and emotionally. Some of us feel that we have even lost our humanity and who we are as people, and we want nothing more than to get back to real life.

( http://lymelightfight.wordpress.com/2013/06/25/what-i-wish-healthy-people-knew/  )

Trust us, this isn’t fun and we don’t want to be coddled or get undue attention, only understanding and (hope of all hopes) a cure.

Thanks for listening.

alone-lonely-girl-beautiful-sad-waiting-seaside