I write a lot about the emotional and social aspects of having a chronic disease and the frustrations that come with it.
I know a BIGGIE with the chronically ill is the feeling of isolation and not being able to participate in normal activities, or at least not as many. Now before I continue there is a great spanse in the Lyme world from bed-ridden and unable to go out at all, to “functioning Lymie” who can maybe hold a job and get by but has limited energy for anything else.
I fall into the second category (I have lived through the first), where I can be social but it has to be carefully planned and very dependent on how I’m feeling and whether I’m working (same day as work usually doesn’t happen).
Oh and did I mention mornings? Lymies know about the morning toxic hangover and how hard it is to get moving in the AM. Which is why church is hard, Saturday morning breakfast get togethers or morning bible studies are out.
That said, I find I’m in a season of life where I (mostly) have to chase and pursue friends to get together. You see if I don’t attend the functions where everyone congregates and makes those “dates” together outside of said function, I’m kind of left having to be the electric communication stalker.
Now I’m not saying people don’t care, or that I don’t have some amazing friends that keep in good touch and are very caring, but there are also some who never make contact on their own, or maybe they say “yes we should get together” and then leave it hanging and never let me know what works for them.
In the age of instant communication when everyone is always on their phones, how did it get to be so hard to communicate and get people to respond? Is it the whole country or is it worse in overpopulated/hyper-busy/rush rush rush areas like Western WA where I live? I mean come on; traffic alone here could keep people wanting to hide in their homes with the blinds closed and huddled in a corner. Driving 10 miles to meet a friend here could mean 40 minutes in traffic and taking your life in your own hands.
Anway, life just seems to get more challenging with every pasing year, healthy or unhealthy.
Those are my musings for today.