So What DOES Happen When A Person With Autoimmune Intolerences Cheats?

So because this is highly subjective and everyone’s body is different, I can only share what I go through when I “cheat” on my diet. 

Last night myself, my sister and our “brother” Dave visited my grandpa who is a recent widower and also just had back surgery. We had a wonderful very long visit, and ended up ordering dinner in the way of pizza. Now my sister and I had to find an alternative dinner source because of our food restrictions, but…..pizza! Besides our other food last night we both ended up picking off and eating some toppings off of a slice (dairy, processed meats, tomatoe, sulphates….). (I do draw the line even in little cheats at grains or gluten, that would put me under for weeks.)

Now baby cheats happen all the time, simply because my food restrictions are caaaraaazy! (See below). So having low reaction items sneak into my diet in the way of a little seasoning, or a little taste, happens all the time. And I beat myself up over this! because I always wonder “if I was 100% good all the time would this autoimmune stuff get better”?

I should clarify that on the iGg there are low reaction items and high reaction items, the “medium” one I struggle with on a daily basis is chocolate. (Hallelujah I was able to get off coffee, which makes me horribly sick). 

Okay, Back to what happens after pizza stripping: I woke up in th middle of the night feeling hot and restless, I went back to sleep but woke up several more times feeling agitated and with a growing headache that ended up being a pounding that encompassed my head and went down my spine. This morning my usual twenty pounds of fluid retention and inflammation had kicked it up a notch and there is an extra layer of squishy water under my skin all over my body. My eyes and face are all puffed up and I don’t look like “me”. Along with the extra inflammation comes burning pain. Then there is the extra acne that made a grand appearance this morning. My brain is foggy like an English moor. Besides that I just feel heavy and toxic and downright gross 😑

This will more than likely last for a few days. What I can do about it is detox like a mad woman, take binders, drink lots of water, make sure I get as many doses of my anti-mast cell suspension in the next few days as I can.

And there you have it. But What would have happened if I had had a major cheat? I don’t even want to think about it. 
The iGg allergy list. 

Living a half life

It’s 5am, I’ve been up since 2:30. Another night of insomnia where my mind and my body are betraying me again. My brain won’t shut down, and I’m having waves of heat, systemic irritation and an upset gut. My buddy edema which never leaves or forsakes me is also having a great party.  I have to get up at 7:30am for work and I am hitting a wall right now physically, mentally and emotionally. 

How do i keep going on? How much more of this can I take? And with this emotional crash comes all the old hurts and devastations, anger, garbage and the “lies” that are really true but just a matter of perspective (is my liver causing me this crisis?): I am such a waste of a human being. I’m a black hole in a world of people who have value. My health has cost about 100,000 and where am I now? Am I living and thriving? No. Do I believe the doctors that say they can help and keeping pouring money out while I still live a half life and feeling like crud, or would it be better just to stop everything and give up?

My body is angry. It likes being angry. It likes to punish me for every bite of food I eat. It likes revenge for any bit of fun I have or energy I expel…. The only difference is in degree. So I made myself soup tonight all healthy and diet friendly, save maybe for garlic. Is this the way it’s always going to be? A night of sleeplessness and misery for something stupid like eating a little garlic? 

Why won’t the fluid retention/autoimmune/pain/fatigue get better? Is it mast cell like we are exploring now? Is it lymph virus? Toxins? Liver? Kidney? Pancreas? Spleen? Leaky gut? Celiac? All of the above? Parasympathetic nervous system?….

I have been told all of the above, treated for all of the above and more (and we’re not even talking about the Lyme and coinfections anymore). 

What hurts right now is thinking about all the normal people who live “whole” lives and don’t know what it’s like to live with access to  pieces of yourself, to never be whole or wholly alive. On your good days skating by at 70%, having to choose between obligation and everything else that makes up life. Obligation always wins and then years of your life just pass by and you find yourself in the south side of your thirties and possibilities for the future keep narrowing with every passing year until they are a pinhole and the things you have never done and never experienced far outweigh what you have, and I’m not even talking about big bucket list stuff… I’m talking about life experiences most take for granted.

A tear just fell on my pillow. I know tomorrow is another day and I know realistically I will not be so negative when I’m not out of my mind with lack of sleep, grief and discomfort. It’s just tough as I am getting another wave of heat and agitation thinking about a full day of work on an empty battery…

Do you live in Washington? Would you like someone to pay you for being sick? It’s possible….

Those of us with chronic illness know all too well the financial strain of chronic illness; not only is it MASSIVELY expensive to treat but most of us either can’t work full time or can’t work at all.

That’s why I wanted to share a little discovery that may not make a big dent in your income, but everything helps.

If you live in Washington there is a unique lab in Everett (one of only two in the country) that supplies unique plasma for research and testing (NOT human donation). They have a criteria they look for and want people with severe food and seasonal allergies, but also autoimmune diseases and….Lyme!

Payment is dependent on which catagory you fit into and what their clients are looking for at the time. But generally you might receive $185-$200 for a donation. And once you are in their database you can donate again and again.

Let me share my experience on the process and how it feels:

Initially you come in and fill out paperwork, and bringing any past blood work you may have had is helpful. They take an initial blood draw to be tested to see if you qualify for their program. Several weeks later they will let you know and then you can schedule your donation.

For me I had to wait longer because my ND was not initially happy with my ferritin levels and wanted them to be built up. So several months later I made my appointment. It takes about 2 hours including paperwork and testing the day of your donation. They do an intitial finger prick to check some levels and how you are doing that day (surprisingly it didn’t hurt), they want to make sure they won’t be harming you by taking plasma. They also do a urine sample to test (I believe) protein levels and a few other things. If these look good you can begin your donation!

For those of us that get regular IV’s the needle is no more uncomfortable than this. You are hooked up to a machine for approximately 45 minutes. It cycles back and forth drawing out blood, extracting plasma, and putting your red cells back. This is great because with regaining your red blood cells you don’t feel faint or weak like you would giving blood. During the process you are in a comfortable lounge chair with a heating pad and blanket if you want it. The nurse was extremely nice and chatty and told me that some of their donations travel all over the world for research.

When you’re done they give you a payment slip and send a check in the mail.

So, the process really isn’t too bad. I would recommend anyone with a chronic illness (or severe allergies) look into this to make some money and maybe make a difference at the same time.

If you do, PLEASE mention Jennifer Steidl sent you because the other best part is that once you are a donor they also pay you for referrals. So in that way we can help each other through these meager seasons. 

http://www.plasmalab.com

Also I have included location information in the photo 🙂


All Natural Miracle Antihistamine?

i am already a firm believer in the healing power of essential oils and have found several to be useful. 

Today with my inflammation and pain symptoms being at code red I started seeking if there were oils that would work as an antihistamine, and bingo! Found several great articles on the magic LLP (lavender, lemon and peppermint). Can be used both externally and internally.

I read a few testimonials and articles and I’m going to give it a try. Took my first capsule 15 minutes ago. I will let everyone know how it works, and in the mean time here is some great info:

EO Antihistamine