So today is sort of a mini follow up to Confessions Of A Functioning Lymie;
And honestly today wasn’t “bad”, but it wasn’t easy.
At this point after years of treatment I am not as sick as many, so relative to many I have no complaints. I have still been having some harder days lately due to increased work schedule and “?”. It’s the “?” That drives us mad. “What did I do to make things worse?” “Was it that slice of organic cheese? (Not supposed to have dairy)” “was it the fact that I’ve been having some dark chocolate lately?” “Could it be those little cheats can culminate in autoimmune fury?”
I woke up at 9am in order to try and go to church and forwent an extra hour of sleep that I probably would have gotten. But for whatever the reasons, today I woke up with my face puffy, feeling hungover and heavy and my limbs (especially my legs) full of fluid and enormous. (Took me 5 minutes to squeeze into my leggings).
My POTS seems exacerbated along with the flare up and so standing at the sink to get ready left me a little breathless. I was 45 minutes late to church as I couldn’t get out of the house until after 11 (this time was spent trying to get moving, trying to wake up and doing a coffee enema to see if that helped the inflammation).
The only reason I didn’t stay home all together was a friend wanted to take me out to lunch after church, and I don’t get out enough as it is.
So I am glad I went and I had a good time, but was uncomfortable the whole afternoon, foggy and in pain. My vision also gets blurry with increased inflammation .
And after this “strenuous” 5 hour afternoon out what did I come home and do? I went straight to sleep for a couple hours.
Still grateful I am mobile and done dealing with the severity of symptoms I used to, but a lot of days are still a struggle and every expenditure costs me spoons.