Explaining to the lay person what chronic Lyme feels like

In the midst of the worst

Liberation through Lyme

I have no doubt that my husband loves me but I know that it frustrates him when I try to explain that he will never be able to understand what I’m experiencing. After a great talk today I think I may have come up with a way that can help him at least wrap his brain around it. I thought I would share it with you all too.

Imagine the worst case of Mono that lasts for 3 months, leaving you unable to lift your head off of the bed or take care of your basic personal hygiene unassisted. Now add in excruciating joint pain, migraines, and constant nausea. On top of that your cognition is effected: you have lost your short term memory and your working memory is hampered (you can no longer manage complex reasoning and are unable to find the word your are looking for). You may…

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My Chronic Illness CV / Resume

I adore Louise’s writing, she has been a unique and much needed voice in the Lyme community

DDDangerous.com

You  may think in the time you’ve been sick you’ve done nothing and been wasting your time. This just isn’t true! You’ve collected an entire new skill set that can be laid out in CV form just the same as more traditional skills. And don’t forget people, they’re transferable skills.

I thought I’d knock up a quick draft of my new CV to give you an example of some of the things you may have also learned on your journey, valuable skills that not that many people have! Don’t forget the buzzwords!

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Louise DDDangerous

DOB: That time in the 80’s where people thought that Lucozade was a health food, ready meals were perfectly healthy and wearing neon was a great idea.

The blurb

I’ve been chronically differently abled since 2011 causing a dramatic shift in life focus, goals and opportunities. As a medical refugee that has used several…

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Why Most Lyme Patients Never Get Totally Well

Lymestop: Safe, Effective, All-Natural

All of our Lyme patients have at least two Lyme-related viral infections. I  have identified five of them.  I simply call them Lyme Virus A, B, C, D, and E.   The most common organs that are infected by these viruses include the brain, joints, liver, heart, blood, and small intestine.  Antibiotics will  not be effective against these viruses. Antibiotics are only effective for bacterial infections.  This is why so many Lyme patients, even after years of conventional treatment, never get totally well.

If one if these Lyme viruses is infecting your brain, you can suffer with chronic fatigue, cognitive issues, and neurological problems.  If your heart is involved, you can have persistent heart dysfunction that will gradually get worse.   If one of these infections is in your blood (and spleen), you will definitely have chronic fatigue.  If your joints are infected, you will have joint pain and stiffness.   If a virus is infecting your liver, you can have chronic food…

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Lyme Wars, A New Hope

I finally had my genetic consultation today to go over how my genes are contributing to my health, it lasted 2 hours. I am probably only retaining a small portion of all the information I received with all the talk of genetics, epigenetics and snps, mthfr, comt….. all of which were a little beyond me. The doctor went over all the good and bad factors. It is very interesting how it is written in our genes how our bodies respond to environmental factors and disease, why some things that can destroy some people don’t cause the same harm to others. I think genetics has a great influence on how different people handle Lyme. My doctor affirmed this.

I won’t name everything here, but as a quick overview I have a genetic predisposition to celiac and I am to avoid all grains
I have genetic factors that have been “turned on” regarding gut issues, inflammation, neurological issues, dopamine deficit, immune reactivity, thyroid, histamine reaction and mast cell activation.
I am greatly skimming and over simplifying, but basically now that I am moving past the lyme (with it’s coinfections) and other things I have dealt with, we can have great success at starting to “turn off” all the negative factors in my genes that have been activated by decades of disease. It will be a matter of skirting things that will cause me harm like any folated vitamins or minerals, being very careful with diet, activating good genes and detox pathways and doing some rewriting to tell the body to stop histamine, cortisol, mast cell and other negative productions.

I left my appointment having a lot of confidence that this clinic will be able to eradicate the autoimmune disease that the other diseases left behind. What an amazing blessing because otherwise I could have been left in an endless whirlpool of autoimmune reactivity Lyme or no Lyme.

Oh! And best part, the doctor had a nice personal talk with me afterward and spent time praying with me.

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