I don’t want attention

What is your default when you don’t feel well? Some people want attention, some people want to be comforted, some people want to pretend that they are better than they really are. Me? I usually just want to be left alone.
No offense to the dear people I love so much in my life, but it is really hard when you don’t feel well, you look gross and have limited energy to be around others.
For me I think there are two things that being ill long-term has fed in the way of insecurities; although I am a lot better than I used to be, but I still struggle with a negative body image. So when I put on a lot of weight and/or a lot of water weight (gee thanks GI issues and chronic edema) I feel really gross about myself and I don’t want anyone to see me. Also I am an introvert. INFJ/INTJ so it is easy for me to regress into my “cocoon.”

Okay for everyone out there that thinks being introverted means I don’t like people or am antisocial that’s not true! It means that I greatly value time with a few people vs a hoard, or one on one. There is nothing so wonderful as having a great conversation with one friend or a couple of good friends.
but when you don’t feel good, and or don’t look good, putting out social energy is tough.
So in these last several weeks with this little health setback I have been thinking that I have been isolating again. So I’m just putting those thoughts out there for today. Is this true for any other sickies out there?

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Have your Psychiatrist Shake Hands With Your Gastroenterologist…huh?

This article is a very interesting read about the connection between your digestive health and psychiatric disorders. Are they all related? Well no of course not, but it is interesting. After all, those reading this with autoimmune disorders that involve gut troubles know when you are having trouble, um, you know….moving, your head gets really foggy and you can’t think straight and every other symptom you have is greatly exacerbated.
Link to ABC News Gut To Brain Article

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Cleansing Juice

The color may be off putting (this is what happens when you combine red and green), but it tastes pretty good.

I am going to be trying to do a lot of cleansing to (hopefully) get me past this little health slump.

My cleansing juice:

2 red beets
2 golden beets
1 bunch celery
1 apple
Half a container (Costco size) spinach
1/3 bag (Costco size) baby kale
Fresh ginger
1 large cucumber
A bunch of baby carrots (didn’t measure)
1 large bunch parsley

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Complete Lyme Symptom List

I know I have posted this before, but it is just the best most complete Lyme symptom list.

One thing I didn’t do before was highlight the symptoms I have/do experience, so this time I did. Items in bold I have experienced in the past over the years, or presently experience.

AUTONOMIC NERVOUS SYSTEM/ENDOCRINE/IMMUNE/HORMONE

Abnormal sensitivity to hot or cold
Allergies (nasal, other; new, increased or worsening)
Canker sores (frequent)
Chills and/or shakes when hungry (may occur instead of feeling hungry)
Cold hands and feet
Extreme fatigue after minimal exertion
Feeling hot or cold often
Flu-like symptoms, on-going or recurrent after initial gradual or acute onset; includes mild fever (99.5-101.5 F /
37.5-38.6 C), chills
Hair loss (alopecia)
Herpes simplex or shingles rash
Increased susceptibility to infections
Low-grade fevers
Low blood pressure (below 110/70)
Low body temperature (below 97.5)

Lymph nodes painful, swollen (in neck; under arms)
Night sweats (not related to menopause or fever)
Orthostatic Intolerance (neurally mediated hypotension)
Reactive hypoglycemia and insulin resistance
Thirst, increased
Temperature irregularities; often feeling hot or cold irrespective of actual ambient temperature and body temperature; low body temperature (below 97.6 F / 36.4 C)

Thyroid inflammation (acute thyroiditis; hypothyroidism; Hashimoto’s thyroiditis)

CARDIOPULMONARY/RESPIRATORY/CIRCULATORY

Cardiac abnormalities (mitral valve prolapse; myocarditis; tachycardia; palpitations; dysrhythmia)
Cough
Dyspnea (out of breath) or shortness of breath (air hunger) after minimal or no exertion
Heart attack
Heart palpitations
Heart pounds so hard it shakes body, bed
Pulse skips
Serious rhythm disturbances of heart
Sighing, frequent, not related to mental/emotional state
Stroke
Vasculitis

CENTRAL NERVOUS SYSTEM/NEUROLOGIAL/NEUROPATHIC/OTOLOGIC

Abnormal CAT, MRI and/or SPECT scans
Alcohol intolerance
Aseptic meningitis
Brainfog”; inability to think clearly
Difficulty moving tongue to speak
Diminished or absent reflexes
Fainting or blackouts; feeling like you might faint
Headaches (frequent, severe, recurring)
Hearing fluctuations (sounds fade then return)
Hearing changes, often from day to day (need to turn up, then down, volume of radio, TV)

Joint or arthritic pain not relieved by NSAIDs (ie, ibuprofen)
Libido (decreased)
Light-headedness, feeling spaced-out
Migraine headaches
Muscle twitching
Noise intolerance

Paralysis or severe weakness of limb
Parasthesias (numbness, tingling, crawling, itching sensations) in face, head, torso, extremities
Photosensitivity
Radiculitis
Seizures; seizure-like episodes
Sensory alterations (hyper- or hyposensitivity) – smell, taste, hearing (noise intolerance)
Severe muscle weakness
Syncope (fainting)
Tinnitus (ringing/noises in one or both ears)
Touch or weight of clothing on or against body causes discomfort or pain
Tremors, trembling

COGNITIVE FUNCTION

Becoming lost in familiar locations when driving
Difficulty with simple calculations (e.g., balancing checkbook)
Difficulty expressing ideas in words

Difficulty moving your mouth to speak
Difficulty following simple oral (spoken) instructions
Difficulty following complicated oral (spoken) instructions
Difficulty integrating information (putting ideas together to form a complete picture or concept)
Difficulty putting tasks or things in proper sequence
Difficulty paying attention
Difficulty following a conversation when
background noise is present
Difficulty making and/or retrieving memories (long/short-term memo
ry deficits)
Difficulty understanding what you read
Easily during a task
Feeling too disoriented to drive
Forgetting how to do routine things

Forgetting the use of common objects (such as, what to do with the shampoo when you are standing in the shower)
Forgetting how to get to familiar places
Impaired ability to concentrate
Losing your train of thought in the middle of a sentence

Losing track in the middle of a task (remembering what to do next)
Poor judgment
Switching left and right
Slowed and/or slurred speech
Stuttering; stammering
Transposition (reversal) of numbers, words and/or letters when you speak and/or speak
Word-finding difficulty
Using the wrong word

DIGESTIVE/HEPATIC

Bloating; intestinal gas
Decreased appetite
Digestive chemicals (acid, enzymes) reduced or absent
Esophageal reflux; heartburn
Frequent constipation
Frequent diarrhea
Food cravings (especially carbohydrates, sweets)
Food/Substance intolerance
IBS
Liver function impaired; mild abnormalities
Increased appetite
Nausea

Spleen tender or enlarged
Stomach ache, cramps
Vomiting
Weight gain or loss

EQUILIBRIUM/PERCEPTION

Bite your cheeks or tongue frequently
Bump into things frequently
Difficulty discriminating printed matter despite proper vision correction
Distances (difficulty judging when driving; when putting things down on surfaces)
Dizziness or vertigo
Dropping things frequently
Dysequilibrium (balance problems)
Impaired coordination
Loss of Perception (not quite seeing what you are looking at)

Some patterns (stripes, checks) cause dizziness
Spatial disorientation
Staggering gait (clumsy walking)
Words on printed page appear to jump off page or disappear when staring at them

EYES/VISION

Acuity changes not related to prescription changes
Blind spots
Blurred vision
Conjunctivitis
Diminished visual acuity in absence of actual vision change
Drooping eyelid
Double vision
Eye pain
Flashes of light perceived peripherally
Optic neuritis or atrophy
Oscillopsia (image jiggles)
Prescription changes more frequently
Pressure sensation behind eyes
Red and/or tearing eyes
Retinal damage
Slowed accommodation (switching focus from far to near, near to far)
Spots or floaters not related to migraines
Swelling around eyes
Uveitis and/or iritis
Wandering or lazy eye

HEAD/NECK/MOUTH

Bell’s palsy (facial paralysis, one or both sides)
Bruxism (grinding/clenching teeth)
Canker sores
Dizziness when you turn your head or move
Dry chronic cough
Dry eyes, nose and mouth (sicca syndrome)
Pain in ears, palate, gums
Periodontal disease
Prickling pain along skin of jaw
Problems swallowing, chewing
Runny nose in absence of cold, allergies
Sinus infections
Sore spot on the top of your head
Temperomandibular Joint Syndrome (TMJ)
Unexplained toothaches
Xerostoma (dry mouth)

MUSCULOSKELETAL

Arthritic pain that migrates from joint to joint
Carpal tunnel syndrome
Frozen shoulder
Intermittent joint swelling
Joint aches (arthralgia)
Joint pain, without redness or swelling
Loss of tone

“Lumpy, bumpy” long muscles
Morning stiffness
Muscle aches (myalgia)
Muscle pain, stiffness, weakness

Pyriform muscle syndrome
Reduced range of motion
Stiff neck

Writing causes pain in hand, arm shoulder

PAIN SYMPTOMS

Abdominal pain
Chest pain
Generalized pain
Shooting or stabbing pains

Painful tender points (FMS: 11 out of 18 tender points)

PSYCHOLOGICAL SYMPTOMS/MOOD/EMOTIONS

Abrupt/Unpredictable mood swings
Anxiety or fear for no obvious reason
Appetite increase/decrease
Decreased self-esteem
Depression or depressed mood
Feeling helpless and/or hopeless
Feeling worthless
Frequent crying for no reason
Helpless/Hopeless feelings
Inability to enjoy previously enjoyed activities
Irritability; over-reaction

New phobias/irrational fears
Panic attacks
Personality changes (labile, irritable, anxious, confused, forgetful)
Phobias (irrational fears)
Rage attacks; anger outbursts for little or no reason
Suicidal thoughts or suicide attempts

SENSITIVITIES

Acute or abnormal reactions to medications
Alteration in taste, smell, and/or hearing
Chemicals (alcohol, medications; lower tolerance for)
Food sensitivities
Increased perception of and sensitivity to noise

Light sensitivity
Sensitivity to odors (able to detect and/or react in concentrations far lower than before and that healthy people cannot smell)

SKIN / NAILS

Abnormal scarring
Acrodermatitis Chronica Atrophician
Blotchy or mottled skin
Bruise easily
Bruises may take longer to appear, and/or longer to fade
Bull’s-eye (Erythema migrans) on light skin (resembles a bruise on dark skin)
Dermographia (minor scratch pressure on skin leaves vivid red welts)
Dry, itchy skin
Easily scar
Eczema or psoriasis
Fragile nails
Frequent skin irritations

Lymphadenosis benigna cutis
Nails that curve under or downward
Overgrowing connective tissue (ingrown hair, adhesions, thickened/split cuticles, cysts, fibroids)
Painful skin (abnormal/excessive pain when scratched or rubbed)
“Paper” skin (feels fragile, tissue-thin when rubbed)
Rashes on body, face
Vertical ridges or beads in nails

SLEEP SYMPTOMS
Abnormal brain activity in stage 4 sleep
Altered sleep/wake patterns (alert/energetic late at night, sleepy during day
Difficulty falling asleep
Difficulty staying asleep (frequent and/or prolonged awakenings)
Hypersomnia (excessive sleeping)
Myclonus (restless leg syndrome; occasional jerking of entire body)

Nightmares (frequent, extremely vivid and/or disturbing)
Unrefreshing/Non-restorative sleep

UROGENITAL / REPRODUCTIVE
Decreased libido
Discharge from breast or galactorrhea
Endometriosis
Frequent urination
Incontinence
Impotence
Infant: premature; low birth weight; low muscle tone; failure to thrive
Interstitial cystitis
Miscarriage or stillbirth
Painful intercourse
Painful urination or bladder
Pelvic and/or rectal pain
Prostate pain
Swollen testicles
Other symptoms worsen before start of menstruation
Worsening of PMS

OTHER
Abnormal or other changes in sweating
Activity level reduced to less than 50% of pre-onset level

Burning sensation (internal and/or external)
Cancer
Changed voice
Changes in sweat odor/body odor
Delayed reaction to overactivity/exertion (onset 24-48 hours after exertion)
Electromagnetic (EM) sensitivity (electrical storms, full moon, affect function of electrical devices)

Fatigue, prolonged, disabling, made worse by exertion or stress
Fibrocystic breasts
“Galloping” cholesterol and triglycerides
Hair loss (not related to age, hormones, diet, medication)
Hands hurt excessively when put in cold water
Handwriting changes, altering signature and/or other writing
Hoarseness
Painful, weak grasp that gives way/lets go
Periods of concentrated thinking causes physical and mental exhaustion, increases pain
Sore throat

Swelling/Idiopathic edema (fluid retention syndrome)
Symptoms worsened by extremes of temperature (hot, cold), stress, and/or air travel
Symptoms change focus from time to time, like infection is moving through the body
Thickened mucus secretions (nose, bowel, vaginal)
Thickened “sleep” around eyes in mornings
Very attractive to biting flies and mosquitoes
Weight changes (usually gain)

COMMON CO-INFECTIONS AND DISORDERS
Babesiosis
Cytomegalovirus (CMV)
Epstein-Barr virus (EBV)
Ehrlichiosis
Herpesvirus
HHV6
Iron deficiency
Mercury or other metal toxicity
Mycoplasma
Systemic mold and/or mold sensitivities

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