New To Lyme? Excellent Article

Whether you are new to Lyme, newly diagnosed, or know some one who is suffering, this is an amazing explicative article.

Lyme disease is a confusing, potentially chronic and debilitating disease.

“I’m assuming if you are reading this, there is a good chance you have Lyme, or someone you love does.  Even if you are too brain fogged to get through it, break it up and read it anyway.  It’s important……” (click link to read more)


The Crest Of The Hill


I was told by my auto immune specialist a couple months into my Lyme treatment that most patients feel about 90% better at the 9-10 month point in treatment. I did not believe him at all. Sitting in that office, my body heavy from toxic weight gain and terrible water retention and inflammation, a throbbing ache in my joints and deep tissue pain in my limbs that had been there for years…I was tired despite getting plenty of sleep the night before, and a heavy cloud hung over my brain. My Naturopath also told me that there would come a day when I would quite suddenly start to feel better, that I would know the tide had turned……yeah right.

Well my autoimmune doctor was wrong, it is about 11 months. But yes, quite suddenly just within the last few weeks it is like an internal switch went on and my baseline energy/pain/cognition/mood….everything, is suddenly much better. I am still dealing with pain and swelling, but my weight suddenly started to drop off, I have more energy, I actually want to see people and do activities.

I think (for me) two things jump started the sudden turn around; about 6-8 weeks ago I had a DNA profile run to test the detox systems in my body to see what wasn’t working. This has been a persistent problem for me with my body having difficulty detoxing, and having to be on constant kidney, liver and other gland and organ support. My Naturopath made adjustments in my herbal and tincture regime according to the results of the test and this is when things started looking up. In case any of you are struggling in this area the test is run by Genova Diagnostics

Now this did start a slight upswing, but not a major one. The other factor is that I really started digging deeper with my relationship with God. I really had a faith crisis in 2012, I was just worn down by everything that was going on in my life, and this year I have been slowly working my way back.

 I just recently came to a place of real peace trusting Him, letting go of a lot of hurt and grief and disappointment, and I honestly feel my better health followed right behind.


So, I find myself in a different place all of a sudden in this journey of illness, where I am not well yet but maybe I am at about 80%. You would think I would have 100% positive emotions and outlook with this change, but what is taking me by surprise is that is not quite the case. When you have been severely ill for a very long time and just live day to day, you are in “survival mode”.you are looking down at your feet because that is all you can muster. But when wellness starts to happen it is like waking up from a coma, and the years that have been stolen from you, the life you haven’t lived, the ravages of disease on your body, kind of hit home. I am finding I have to reinvent my thinking because somewhere long ago I lost a lot of myself. That said, God has also grown me greatly in maturity and faith, and in that sense I am like a butterfly emerging from a cocoon. So now it is going to be one step at a time, seeing what God has for me, and still of course dealing with fighting the disease for another year, and realistically for the rest of my life as it lies in remission in my body.

The Ten Warning Signs of a Chronic Illness

Amazing article! thank you Lymelight

Lyme Light Fight

invisible illness

Chronic illness is often given the nickname “invisible illness”.  Although it is true that most people with a chronic illness can blend in with the crowd in their daily activities, an invisible illness is a lot more visible than you’d think.  There are, in fact, ten signs of a chronic illness.  By learning these signs you will be able to identify someone who could very well need your help and support and you can avoid using the labels ‘lazy’ or ‘slacker’ on someone who does not deserve such.  When you encounter a coworker, fellow student, or friend who is acting strangely, ask yourself the following questions to determine if illness might be the cause.

The purpose of this post is not to guilt-trip you into helping an ill person, nor is it to point out all ill people and make them vulnerable.  Rather, the purpose is to enlighten you with…

View original post 1,853 more words

The Emotions Of An Invisible Illness

This is a re-post from May, but it just feels very relevant right now. You see in spite of having some days of feeling better I feel really emotionally depressed today; when you are so ill that you are barely functioning you literally just live life day to day, because that is all you can handle, I call it survivor mode. When in survivor mode you ignore all the “big” things…all the things that normal people are out there doing because it is just too much, and too painful. So what happens when you start to feel a little better? You realize how much older you are, how many years this disease has eaten away, how very lonely and single you are (at least me), and that your youth was eaten by bacteria…literally. 

    So boo hoo this is just how I am feeling tonight, I am in NO way ungrateful that I am feeling better at the moment, just being honest. That said, here is my original post:
Feelings and Emotions
Lyme disease can be (dependent on your symptoms) what is called an invisible illness. Meaning that you can “look” fine while inwardly you are suffering pain, fatigue, weakness, brain haze and confusion, visual problems, “Lyme brain” (dyslexia, inhibited reading comprehension, cognitive issues, memory problems, inhibited name and word recollection), digestive disorders, edema, poor circulation, cellular oxygen starvation, reduced lung function….
       These are all symptoms that the people around really can’t see, and it is hard to explain sometimes to someone that you generally just don’t feel well. I think people are more understanding of people who are in cancer treatment and going through chemo, how horrible they can feel, their disabling fatigue and pain. Now please, do NOT think that I mean everyone with Lyme is going through what some cancer patients go through, I just mean that the general public know and understand cancer better.
        I am going to run down some of my personal emotional experiences of being sick, before and after diagnosis. Since I have not experienced some of the very severe symptoms of Lyme I am not going to bring them up (Seizures, Palsy, MS symptoms, Alzheimer’s symptoms, ALS symptoms,….death).
ISOLATION: It begins slowly, you are too tired on the weekend or after work so see your friends or do the activities you used to do. People who you used to see regularly don’t call as often and stop inviting you to activities, because they know you will just say no. After time you stop contacting other people, you lose interest in social activities, both because you don’t have the energy and because your brain hormones are now so out of balance you simply don’t care. A state of apathy takes over and your world is your illness. If you are able to work this requires 100% of whatever mental and physical energy you have just to function. At the end of the day you are tapped out, and you honestly don’t even have the desire to talk to anyone. For those around you it may seem like you don’t care anymore, you may be grumpy and irritable, and you don’t communicate like you used to. For you the “not caring” is true, not because you truly don’t care, but because fatigue has set into your brain and bones and you find you don’t have the ability to care.
  DEPRESSION AND LOSS OF SELF: Depression and physical/mental fatigue can be hard to separate sometimes, and honestly I do not always know where one ends and one begins, or at what point they are like paint colors mixed together, indistinguishable one from the other, but I will try. Depression comes on slowly, fueled by the physical pain and symptoms, encouraged by the isolation, and made prominent by losing yourself. By “losing yourself”  I mean I think back to who I was in the past, in those windows of time when I was fairly healthy; I loved photography, hiking, biking, yoga, writing, art, music, being creative, cooking and baking, and many other things. As illness takes over those things fall away, and then your interest in those things falls away, and then the very memory of those interests and desires falls away, and suddenly you really don’t remember what it feels like to be you. Nothing is interesting anymore, and even if it was it takes too much energy to pursue it. So when you spend what little energy you possess on just your responsibilities (job, laundry, doctor appointments) and nothing else, you go into survival mode, and life is about just getting by…..taking pills….breathing, you become a drone.
It took me a while to realize that the lack of emotion that had become my reality was itself an emotion as well. Depression is often not always “feeling” down, but shutting down. I also went through a few months in my treatment where I literally was bed ridden most of the time, during that time I did reach a few rungs lower on the depression ladder. I thought of giving up, that life wasn’t worth it anymore, that things just kept getting worse not better. I am thankful that slowly, a few steps at a time that period did dissipate, both with high doses of vitamin B and just with time…getting past that rough patch in my treatment. But I need to say most of all God was speaking to me through all of it, and trying to reach me on a deeper level, and I had to actively reach back and be embraced.
ANGER: Anger (for me) has been strongly tied into the physical, but it is still a strong emotion I have experienced throughout all this. I have been angry at life for many years for cheating me out of my youth, for robbing me of experiences, for eating my flesh and my cells and my skin…experiencing physical time passing without reaping any of the benefits those years could have given me.I even have to admit experiencing times when I was angry at God. I didn’t want to be, I knew He was good, that He had reason and a purpose, but when you are sick and “blind” all you know is your pain and disappointment, and anger. Thankfully I have talked it through with Him, and have been led back out. But it was not until I surrendered that God has started to open my eyes to some of the reasons I am on this journey. FYI, be very careful if you ever consider praying with an honest heart for faith and a strong testimony, you do not know what you are going to get.
     Like I said, anger for me can be unexpected and mostly physical, primarily tied to my liver. This might sound odd, but it is true, and Angry Liver isn’t just some random term. When my liver is “angry” (overly toxic, backed up, overwhelmed) the anger can be very mild, or I can feel like I want to punch, kick and swear for absolutely no reason, and then be miss sunshine again the next day. Thankfully I now recognize it when it happens, and have tuned in to the actual physical feeling that comes with it. There are different methods to helping your liver along, some of which are probably TMI for the emotion page, but I have learned to deal with.
      SUMMARY:So these are the base negative emotions that I have gone through, all in various degrees at different times. I am better than I was in 2012, but I still have a long way to go. Taking care of the emotional toll an invisible illness has on you is a multiple course of action process;
       Time. Just getting through the time it takes with your Lyme treatment, letting the drugs run their course, getting past when they make you feel worse, making it through the worst of your die-off and Herx reactions.
     Love. I am blessed to have people in my life that love and care for me, both friends and family. Surround yourself with the people that love you, that are willing to listen to what you are going through and want to try and understand.
    Acceptance. This was the hardest part for me because I did not (still don’t) want my identity to be that of a sick person. But you do come to realize that is who you are anyway, whether you label it or not. This is the life you are living. There seems to be a process when you are diagnosed with an illness; Denial, shock, depression, acceptance, fight! Accept where you are in this process, move forward with optimism but accept where your body is now. This will free your expectations and your mind so you can get better. Be kind to yourself, even if you can’t do much spoil yourself with good music, beautiful pictures, whatever brings you even a spark of joy.
   Community. It has been very encouraging and supportive to find others out there that are going through similar experiences. Through WordPress and Tumblr I have found others that can support me, and that I can encourage as well. As far as you are able, reach out.
     God. You may or may not be at the place where you have a relationship with God, I hope you are. I cannot imagine going through what I have without knowing that I have a Father, a Protector, a Shield.  He is my Strength, my Hope, my Everything. I know “I have a future and a hope” in Him. I know that “All things work together for the good of those who love God and are called according to His purpose”. This journey has been tough, but knowing that it is being used for God’s purpose does give me peace and hope. He knew all this was going to happen, nothing is a surprise to Him, He gave me this set of circumstances because He deemed I could handle it, and submit to His will being done through it. I have been honored


I am going to very tentatively say (fingers crossed, wood knocked upon, God willing, with trepidation) I think I am in a bit if an upswing with my health right now. I do realize we never know how long the good times will last, sometimes mere days, sometimes longer. But I am waiting for the day when “the crash” doesn’t come. I have hope in looking to my one Naturopath who is in remission from Lyme and has been asymptomatic for many years. Someday it will be my turn.

DELICIOUS Paleo/Candida Diet/Leaky Gut Diet/No-Sugar…Etc Smoothie


So I guess I would call this an Almond Green Smoothie. Safe for Lymies, Leaky Gut Diet, Anti-Candida Diet, Dairy-Free, Sugar-Free, Soy-Free, Fruit-Free, Gluten-Free, Starch-Free.

And yes, it still tastes good 🙂

2 Cups Unsweetened Almond Milk (I used Almond Breeze brand, use refrigerated if you can rather than shelf stable, in that it has fewer additives. Of course homemade is always best)

2 1/2 Cups cut up Frozen Zucchini (this is something I keep in my freezer all year long. it is an AMAZING way to thicken smoothies without changing or adding to your flavors, and of course better for you then adding thickeners, and better than ice because it doesn’t water it down).

1 Tablespoon of your favorite Green Super Food Powder (raw is best, Food Matters just released their own)

2 Tablespoons Almond Butter (I used some that I ground myself at the store, unsalted)

1 Teaspoon Almond Flavoring (burn off the alcohol first)

1/2 Teaspoon Cinnamon

2 Full droppers of Liquid Vanilla Flavored Stevia (or to taste) (vegetable glycerine based)

1 Tablespoon Maca Powder (any natural grocer should have this or some vitamin stores, it has a malty taste)

Throw it all in the blender!

Neurological Lyme: So You’ve Known Me Your Whole Life And Can’t Recall My Name? Also the Lyme-ALS & MS Connection


Lyme Brain. If you are a Lyme sufferer whether it be chronic, acute or mild, you probably know what this is. It usually involves minor memory lapses, trouble reading and focusing, compromised word recollection, and dyslexia. These symptoms can also be very severe, thankfully I am in the category of the former, and getting much better.

Since the Lyme Spirochete and secondary infections like Bartonella can literally effect anything and everything in your entire body, it makes sense that it can wreak havoc on your brain. I think this aspect of the illness is harder for people to understand; You just end up feeling dumb when you can’t spell words you have known for years, or struggle with simple math problems, and since those around you can’t “see” the disease effecting your mind, it may be hard for the friends, family, and coworkers of Lyme sufferers to understand what is going on with you. Especially if you have yet to be diagnosed.

SO many now diagnosed Lyme sufferers have been told by doctors when complaining about their various symptoms “it is all in your head”, well thank you doctor, in your ignorance you are not completely wrong. How many of you have had doctors suggest anti-depressants or anti-anxiety meds before your diagnosis? It is sad.

Dr Martin Ross MD: “Cognitive dysfunction is a very common problem that often resolves once the Lyme germ and co-infections are under control. Cognitive impairments occur with memory and information processing.” “Cognitive symptoms of Lyme include: Confusion/difficulty thinking; Difficulty with concentration, reading, problem absorbing and new information; Word search /name block; Forgetfulness, poor short term memory, poor attention; Disorientation, getting lost, going to wrong places; Speech errors: wrong word, misspeaking; Mood swings, irritability, depression; Anxiety, panic attacks.”

So you are not crazy, you are not alone, and there is hope!

Here are some helpful links for general information and living with Lyme:


There are also links in some cases of ALS & MS in cases of those patients testing positive for Lyme. Here are some links for the ALS/MS Lyme connection: