I am asking for your help, yes you!

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In a little less than 3 hours we begin the month of May, which is also Lyme disease awareness month. Will you please help me in sharing/reading/liking this post, and others to come?

I have only been specifically blogging about Lyme for a matter of weeks, but so many of you know about the years of undiagnosed suffering, and how completely debilitating this much  misunderstood disease can be. I am also finding SO many other people on this same site writing about their battles with Lyme, and the suffering they are experiencing.

During this month as I post specifically about certain symptoms, FAQ’s, scientific facts and other information, I will ask if you if you are so inclined to shout out to me….re-post….whatever you feel is appropriate. And for those precious people I have known over the years that think I disappeared off the face of the earth, I am sorry…because you are right, I think I did. Maybe this will help in understanding why.

Love,

Jennifer

Down And Dirty

Down And Dirty

The ugly side of using your skin as a detox pathway, at least I know the sauna treatments are working. Although it isn’t permanent (yet) I do notice a reduction of inflammation in my face right after a sauna session. I also feel “lighter”. Hopefully the skin clears up eventually. I am using proactive and manuka oil.

Okay, not strictly Lyme related, but…..

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This is not really directly Lyme related, but it is completely relevant to the care of our bodies which for any Lymie is highly relevant. Our immune systems are so overtaxed, most of us are on super strict diets, and are also dealing with things like candida, SIBO, Leaky Gut, and other illnesses. Over the years nutrition and diet have become a passion of mine.

Here is my quick comment on this article:

“Amen, and wow! I could not agree more. I think that as Americans and as American Christians we can be blind to the fact that we are born into a gluttonous society, and it is our responsibility to “wake up”. God has called us to take care of our bodies, and if we knowingly eat junk that we know causes us harm it IS sinful. Yes that is harsh but it is true. Especially when the “food” we are surrounded with and/or have grown up with our whole lives is so far removed from what God intended us to put in our bodies, full of chemicals and additives that our bodies were simply not made to consume, it is our responsibility to do better for ourselves then poison our cells. And we wonder why there is so much cancer, obesity, diabetes, heart problems, and other illnesses in our “advanced” western society….we are killing ourselves folks, we are killing ourselves. Make a choice not to be blind, and walk in obedience with God in feeding your temple.”

And here is your link:

http://www.relevantmagazine.com/god/practical-faith/socially-acceptable-sin

Silver Linings

Wow, amazingly written and so true. I have just come to the point in my fight over the last several months where I am coming alive again. Partly because of acceptance of my situation, and partly just because I am a little better with mental clarity and energy then I was. It is a little empowering to start taking part of your own care, and doing everything you can do to feel better, rather than spending years feeling like a hopeless victim. Here is to empowerment.

An Uttering That Came From Suffering

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Sometimes when going through the hardest times my emotions bleed through words…

Apart

The world is so far away, so distant as it laughs at me with it’s colors and lights

It has always been so far away, the fullness of life has never been real for me

What if life never happens?

What if I spend my days waiting for a beginning that never comes?

What if I am never free?

It would seem I am a world apart, there is a void between it and me

It would seem that my path is different than most

It would seem perhaps I am set apart for Thee

 

The anguish must come to an end, because I can bear no more

The burden of pain and loneliness and disappointment has broken me

Have I come to expect too much from life?

Am I wrong to long for my hopes and dreams?

Perhaps I have sought wrongly?

It would seem I am so far apart, my existence is not what it ought to be

It would seem that life has passed me by

It would seem instead I am set apart for Thee

 

I need to see with different eyes;

As the haze lifts, instead of a prison cell, I see I am in His hiding place

I have been hidden from the horror of the dawn so long,

Lest if shed light on the truth of my empty wasted years…

And reveal the cracks in my skin, and the hollow echo of what could have been

Maybe I should let the sun hit my face and warm my skin?

Maybe He has been waiting for me?

It would seem that He has prepared a different path, a different journey

It would seem perhaps I am not apart, but set apart for Thee

My Song

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I know I have posted this on FB before, but this song completely encompasses the last few years of my life.

 

“Beauty From Pain” ~Superchick

The lights go out all around me
One last candle to keep out the night
And then the darkness surrounds me
I know I’m alive but I feel like I’ve died
And all that’s left is to accept that it’s over
My dreams ran like sand through the fists that I made
I try to keep warm but I just grow colder
I feel like I’m slipping away

After all this has passed, I still will remain
After I’ve cried my last, there’ll be beauty from pain
Though it won’t be today, someday I’ll hope again
And there’ll be beauty from pain
You will bring beauty from my pain

My whole world is the pain inside me
The best I can do is just get through the day
When life before is only a memory
I’ll wonder why God lets me walk through this place
And though I can’t understand why this happened
I know that I will when I look back someday
And see how you’ve brought beauty from ashes
And made me as gold purified through these flames

After all this has passed, I still will remain
After I’ve cried my last, there’ll be beauty from pain
Though it won’t be today, someday I’ll hope again
And there’ll be beauty from pain
You will bring beauty from my pain

Here I am at the end of me (at the end of me)
Tryin’ to hold to what I can’t see (to what I can’t see)
I forgot how to hope
This night’s been so long
I cling to Your promise
There will be a dawn

After all this has passed, I still will remain
After I’ve cried my last, there’ll be beauty from pain
Though it won’t be today, someday I’ll hope again
And there’ll be beauty from pain
You will bring beauty from my pain

It’s after midnight and the tilapia is chewy

Brilliant writing, and amazing faith

New Hope Beyond

The real title to this blog was to be:  “To submit is divine,”  but I thought that if I wrote that, no one would read it!  Who wants to submit to anything?  Hey, in my flesh and self-will, no way! 

This day I had to succumb anyways to the nausea, headache, half-day of seizure attacks, and relentless sickness that is Lyme Disease and Candida.  Oddly, it was lying in bed with my brain “fried” for hours and staring at the ceiling that the Lord gave me the quietness I needed to discover what might be making me sicker:  every stinking grain of sugar.  Most of us with Lyme, chronic illness and inflammation know the pitfalls of sugar.  I’d already broken my denial on that one earlier last year.  Sugar feeds Lyme and yeast infections (a common complication from antibiotic and bacteria-killing  treatments), messes with metabolism, weakens an immune system already…

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“It’s like losing your life while you’re still alive”

Sums it up very well, it is like life moves on around and past you as you are stuck in a capsule of illness. The only way time touches you is by aging your body… it does not pass by giving you richness, or experiences, or the life stages others experience, it merely pulls at your skin and watches with glee as it watches your cells die.

Fight Lyme

After 70 posts, I still am searching for the words to explain what it is like to live with Lyme disease. While there is no simple answer to describing what it’s like, this quote expresses how I truly feel at times…

“It’s like losing your life while you’re still alive.” – Paul Mihalick

Thank you Jenny Rush for having such a positive attitude towards Lyme and giving us hope that we can get better! And thank you Senator Richard Blumenthal for proposing a bill that will increase Lyme disease awareness and support having short-term and long-term studies on the effects of Lyme disease!

Politicians “Take On” Lyme Disease

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